GOLD Learning Speakers
Sally Pezaro, PhD MSc BA (Hons) PgCAPHE FRCM SFHEA RM
- Speaker Type: GOLD Midwifery 2019, *WEBINARS, Labour & Delivery Symposium 2024
- Country: United Kingdom
Biography:
In 2021 Dr Pezaro won the 'Partnership Working' award from the Royal college of midwives and a 'Midwives Award' from the Iolanthe Midwifery Trust. In 2019, Dr Pezaro was honoured with a first prize award from the Royal Society of Medicine in 'Leading and inspiring excellence in maternity care' and was also first runner-up for the British Journal of Midwifery's 'Midwife of the Year' 2019. - @SallyPezaro
CE Library Presentation(s) Available Online:
This Presentation is Currently Offline
Exploring the Needs of Childbearing Women with Hypermobile Ehlers-Danlos Syndrome (hEDS)
The Ehlers-Danlos Syndromes (EDS) are inherited multi-systemic conditions affecting all connective tissues. Those affected perceive a lack of understanding. Hypermobile EDS (hEDS) is the most common subtype, with significant implications for childbearing women, for whom it is more common. This seminar will present and discuss evidence-based maternity care considerations for this unique subgroup of childbearing women, derived from a recent review of the evidence and an international qualitative study. Greater understandings could translate into practical improvements within maternity care, and a reduction in physical trauma and psychological distress for those with hEDS. Participants are invited to actively engage in critical thinking, practical solutions planning and translating this research into real and positive improvements for maternity services.
Hours / CE Credits: (details) | Categories:
(IBCLC) Psychology, Sociology, and Anthropology, Maternal Illness
This Presentation is Currently Offline
New Educational Tools to Support Childbearing With Hypermobility Spectrum Disorders
Hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD) are multisystemic connective tissue disorders and present far more common than previously thought. Recent international findings reveal that poor experiences for those childbearing can result in a disengagement from services, trauma, stress, anxiety and an avoidance of future pregnancies. Alternatively, supportive care and listening can make a big difference to the child bearer. Maternity staff observed in this research were sometimes perceived to be panicked when providing care in this context. Ultimately, childbearing with hEDS/HSD is challenging, as connective tissue is affected throughout the body. Drawing from the findings of their recent international research, a team of expert co-creators employed the ‘Define, design, refine’ method originating from the Co-Creating Welfare Project to develop tools to support education in relation to childbearing with hEDS/HSD. This was done via a series of online co-creation webinars. The final tools comprised an infomercial, an i-learn module to be hosted by the Royal College of Midwives and a practical toolkit with images for universal use. Co-creators were generally positive about their experiences in engaging in this particular online co-creative process, which enabled them to participate in a national project more easily and effectively overall.
Presentations:
3 | Hours / CE Credits: 3
| Viewing Time: 4 Weeks
Management of Childbearing with Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
It is thought that hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD) are not rare, and yet they are rarely diagnosed. As these conditions affect connective tissue throughout the body they can have a profound impact upon those childbearing, where the human body goes through a multitude of changes in response to pregnancy and birth. They can also impact on the newborn. In order to provide guidance where currently there is none, an international group of patients and academic and clinical experts came together to co-create evidence-based international guidelines for the management of these conditions in pregnancy, birth and beyond. Guidelines include the antenatal, intrapartum, and postnatal periods, and touch on a range of evidence in this field. The lived experiences of those childbearing with hEDS/HSD also demonstrate how clinicians can make a real difference to outcomes and experiences, yet clinicians often express a need for more knowledge and education in this area. It is hoped that these guidelines will be used by clinicians and birthing people to facilitate evidence-based decision making in this area for improved outcomes and experiences overall.
Presentations:
3 | Hours / CE Credits: 3
| Viewing Time: 4 Weeks
Presentations:
10 | Hours / CE Credits: 10
| Viewing Time: 8 Weeks
Hours / CE Credits: 1 (details) | Categories:
(IBCLC) Psychology, Sociology, and Anthropology, Maternal Illness
