Families whose infants die in the Neonatal Intensive Care Unit (NICU) may be asked about autopsy, organ donation, and research tissue donation. Understanding how parents experience these often difficult but important conversations is crucial information for healthcare teams. This presentation provides the results of research that looked at the perspectives of parents who had experienced neonatal loss. Make a lasting difference to the families in your care by learning more about how to approach the conversation of autopsy, organ donation, and tissue donation for research in a way that is parent centered.
Learning Objectives:
1. Describe the importance of when, how, and why to offer choice to parents making decisions during neonatal death
2. Explain the various roles in end-of-life care
3. List at least 2 ways to promote communication with parents during neonatal loss.
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