New Educational Tools to Support Childbearing With Hypermobility Spectrum Disorders
For International Day of the Midwife 2020, we shared a presentation from academic midwife Dr. Sally Pezaro. Titled "New Educational Tools to Support Childbearing With Hypermobility Spectrum Disorders", Dr. Pezaro shared newly developed clinical tools and resources that shine a spotlight on the important role that midwives play not just in clinical care, but also in academic research and development that leads to improved care for birthing families.
Dr Sally Pezaro is an Academic midwife, and an editorial board member of the British Journal of Midwifery and the International Journal of Childbirth. She is also a member of the Mary Seacole Awards steering group funded by Health Education England, a panelist on the Nursing and Midwifery Council’s fitness to practise Investigating Committee and ‘The Academic Midwife’ on Facebook. Sally has experience working as a midwife clinically in the United Kingdom, the Gambia and Ethiopia. Reflecting on her own experiences, Sally has developed a passion for supporting the psychological wellbeing of health care professionals. Throughout her PhD work, Sally secured the case for developing an online intervention, designed to primarily support midwives in work-related psychological distress. The overriding vision for Sally’s ongoing research is to secure a psychologically safe professional journey for midwives and excellence in maternity care. Her latest work focuses upon improving maternity care for those childbearing with hypermobile Ehlers-Danlos syndrome (hEDS), transgender communities, substance use and domestic violence in particular.
1. Discuss the experiences of those childbearing with hEDS/HSD and those caring for them
2. Describe how online co-creation can be used to develop educational tools
3. Assess emerging areas in midwifery research and how educational tools can be used in maternity services to support staff and those childbearing with hEDS/HSD
Hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD) are multisystemic connective tissue disorders and present far more common than previously thought. Recent international findings reveal that poor experiences for those childbearing can result in a disengagement from services, trauma, stress, anxiety and an avoidance of future pregnancies. Alternatively, supportive care and listening can make a big difference to the child bearer. Maternity staff observed in this research were sometimes perceived to be panicked when providing care in this context. Ultimately, childbearing with hEDS/HSD is challenging, as connective tissue is affected throughout the body. Drawing from the findings of their recent international research, a team of expert co-creators employed the ‘Define, design, refine’ method originating from the Co-Creating Welfare Project to develop tools to support education in relation to childbearing with hEDS/HSD. This was done via a series of online co-creation webinars. The final tools comprised an infomercial, an i-learn module to be hosted by the Royal College of Midwives and a practical toolkit with images for universal use. Co-creators were generally positive about their experiences in engaging in this particular online co-creative process, which enabled them to participate in a national project more easily and effectively overall.
Accreditation
Midwifery CEUs - MEAC / NARM Contact Hours
This program is accredited through the Midwifery Education & Accreditation Council (MEAC) for 1 Contact Hour (0.1 MEAC CEU).
It is also recognized by the North American Registry of Midwives (NARM) for 1 CEU/Contact Hour. Please note that 0.1 MEAC CEU is equivalent to 1.0 NARM CEU/Contact Hour.
If you have already participated in this program, you are not eligible to receive additional credits for viewing it again. Please send us an email to [email protected] if you have any questions.
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