Phenylketonuria and Breastfeeding: Facts, Challenges and Reality
Breast feeding can be challenging in some special situations, phenylketonuria is one of these conditions that requires a lot of knowledge and support. PKU is an inherited metabolic disorder that needs a special protein free diet to be followed lifelong, to grow normally, to avoid the irreversible and severe intellectual impairment and developmental abnormality. Years ago PKU was an absolute contraindication for breastfeeding, but with more research on the disease and the breast milk components, it is now strongly suggested to breastfeed a PKU baby along with his or her special phenylalanine free formula under close supervision from a dietitian and experienced breastfeeding supportive pediatrician. It is a difficult but achievable task, a prime example is my 3 PKU children who I managed to breastfeed for almost 2 years. Along with their PKU formula and special low protein diets they are enjoying healthy, normal mental and physical development.
This lecture was originally offered at our 2018 GOLD Lactation Conference.
Doctor Asma'a Kurdi , Syrian family physician MRCGP member certified since October 2013, was the first lactation consultant doctor in Ajman certified on October 2008 ,recertified October 2013. worked as a GP in UAE , Ajman PHC since 02/2006 till 08/ 2016, with big efforts to enhance breastfeeding practice among colleagues and patients, was an active member in the breastfeeding support group ,she presented many lectures in the basic 20 hours breastfeeding training courses for health workers in Ajman .a mother of 4 children , 3 of them are PKU , with her knowledge and faith in breastfeeding she managed to breastfed them for more than 2 years and kept them healthy and normal children. She had special interest in PKU researches and but huge efforts to initiate a PKU family association in UAE . an active member in Arabic PKU mothers what's up support group ,and low protein recipes instagram page .
Objective 1: Describe PKU history, clinical manifestation, and neonatal screening;
Objective 2: Recognize the guidelines for PKU management and new areas of research;
Objective 3: Define maternal PKU, and its management;
Objective 4: Describe why breastfeeding is a choice for PKU baby feeding, and explain the feeding strategies, the challenges, and define the role of the lactation consultant in the management of this condition;
Objective 5: Outline a real-life case study of a successful experience
Breast feeding can be challenging in some special situations, phenylketonuria is one of these conditions that requires a lot of knowledge and support.
PKU is an inherited metabolic disorder that needs a special protein free diet to be followed lifelong, to grow normally, to avoid the irreversible and severe intellectual impairment and developmental abnormality.
Years ago PKU was an absolute contraindication for breastfeeding, but with more research on the disease and the breast milk components, it is now strongly suggested to breastfeed a PKU baby along with his or her special phenylalanine free formula under close supervision from a dietitian and experienced breastfeeding supportive pediatrician.
It is a difficult but achievable task, a prime example is my 3 PKU children who I managed to breastfeed for almost 2 years. Along with their PKU formula and special low protein diets they are enjoying healthy, normal mental and physical development.
Accreditation
CERPs - Continuing Education Recognition Points GOLD Conferences has been designated as a Long Term Provider of CERPs by the IBLCE--Approval #CLT114-07. 1 L-CERP.
If you have already participated in this program, you are not eligible to receive additional credits for viewing it again. Please email [email protected] if you have any questions.Additional Details
Viewing Time: 2 Weeks
Tags / Categories
(IBCLC) Physiology and Endocrinology, Breastfeeding Complications
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